Newborn Screening Kit

Newborn Screening Kit

We are thrilled to share with you the completed newborn screening for adrenoleukodystrophy: an advocacy tool kit. 

This tool kit has been developed as an empowering and educational resource created in collaboration with bluebirdbio, to raise awareness of ALD and the potentially life-saving opportunity newborn screening can provide.

Tool kit content include:

  • The importance of NBS for ALD
  • What is ALD and what is NBS?
  • What is advocacy?
  • Where is NBS today
  • How are diseases added to NBS panels in the United States, in the United Kingdom, and in select EU countries.
  • What you can do?
  • Resources
  • FAQ
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