Newborn Screening Kit
We are thrilled to share with you the completed newborn screening for adrenoleukodystrophy: an advocacy tool kit.
This tool kit has been developed as an empowering and educational resource created in collaboration with bluebirdbio, to raise awareness of ALD and the potentially life-saving opportunity newborn screening can provide.
Tool kit content include:
- The importance of NBS for ALD
- What is ALD and what is NBS?
- What is advocacy?
- Where is NBS today
- How are diseases added to NBS panels in the United States, in the United Kingdom, and in select EU countries.
- What you can do?