Dear LRRO Donators, I have been missing some mail through Australia Post. Would that kind person who rung to tell me that their donation cheque has not been presented, please ring/email me again as the replacement one is also missing. My street and city address changed over a year ago as did my landline. However, all else is the same. […]
We are thrilled to share with you the completed newborn screening for adrenoleukodystrophy: an advocacy tool kit. This tool kit has been developed as an empowering and educational resource created in collaboration with bluebirdbio, to raise awareness of ALD and the potentially life-saving opportunity newborn screening can provide. Tool kit content include: The importance of NBS for ALD What is […]