Useful Links
The following list provides links to information and different type of leukodystrophy support organisations.
- Aiden’s Law - ALD Support
- ALD Info
- ALDConnect
- Alex, The Leukodystrophy Charity
- Australian CADASIL Support Network - CADASIL
- Bluebird bio - biotech gene therapy
- Calliope Joy Foundation – MLD – Newborn Screening
- Cambridge Stroke – CADASIL
- Canavan Foundation
- Canavan Research Illinois
- Cure MLD
- Find a Cure - Chloe Saxby – Vanishing White Matter
- Fore For 4H Organisation - 4H Syndrome
- Global Dare - Refsum Disease
- International Aicardi-Goutieres Syndrome Association
- Knock Out ALD - ALD
- Krabbe Connect
- NTSAD – Tay Sachs, GMI, Canavan, Sandhoff, Farber
- PMD Foundation - Pelizaeus-Merzbacher Disease
- Retina Australia - Retina inherited condition
- United Leukodystrophy Foundation – All Leukodystrophies
- VWM Families Foundation – Vanishing White Matter
- Waisman Centre - Alexander Disease
- X OUT ALD - ALD
- Yaya Foundation – POLR3/4H