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Useful Links

The following list provides links to information and different type of leukodystrophy support organisations.

  • Aiden’s Law - ALD Support
  • ALD Info  
  • ALDConnect
  • Alex, The Leukodystrophy Charity
  • Australian CADASIL Support Network - CADASIL
  • Bluebird bio - biotech gene therapy
  • Calliope Joy Foundation – MLD – Newborn Screening
  • Cambridge Stroke – CADASIL
  • Canavan Foundation  
  • Canavan Research Illinois
  • Cure MLD
  • Find a Cure - Chloe Saxby – Vanishing White Matter
  • Fore For 4H Organisation - 4H Syndrome
  • Global Dare - Refsum Disease
  • International Aicardi-Goutieres Syndrome Association
  • Knock Out ALD - ALD
  • Krabbe Connect
  • NTSAD – Tay Sachs, GMI, Canavan, Sandhoff, Farber
  • PMD Foundation - Pelizaeus-Merzbacher Disease
  • Retina Australia - Retina inherited condition
  • United Leukodystrophy Foundation – All Leukodystrophies
  • VWM Families Foundation – Vanishing White Matter
  • Waisman Centre - Alexander Disease
  • X OUT ALD - ALD
  • Yaya Foundation – POLR3/4H   

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