Australasian Leukodystrophy Foundation | Incorporated No. IA41033

Medical

Medical

General Practitioners (GPs)

A primary care physician

Paediatricians

In some countries, paediatricians are specialists and require a referral from a GP. Paediatricians specialise in medical care of babies, children and adolescents.

Paediatric Nurses

Nurses who specialise in nursing babies, children and adolescents.

Clinical Geneticists

A medical practitioner who cares for children and adults with genetic conditions.

Adult/Paediatric Neurologists

A physician specialising in diseases of the nervous system (neurology) and is trained to investigate, diagnose and treat neurological disorders.

Adult/Paediatric Endocrinologists

A specialist who deals with the endocrine system in the body which consists of glands that secrete hormones into the blood, rather than into a duct system. Hormone levels are changed in a person suffering from a leukodystrophy and need to be monitored for any possible replacement therapy.

Adult/Paediatric Metabolic Physicians

A physician who cares for children and adults who have inherited diseases and disorders that involve the biochemistry of the body.

Child Psychiatrists
Certified Child Psychologists

The difference between a child psychiatrist and a psychologist is primarily a psychiatrist is a physician who can prescribe drugs.

Opthalmologists

A doctor who specialises with anatomy, physiology and diseases of the eye.

Gastroenterologist

Gastroenterology is a branch of medicine focussed on the digestive system and its disorders. Their main interest will be in assisting you with alternative feeding methods.

Dentists

Their role is to maintain teeth and gum integrity.

Palliative Care

Palliative care is the holistic approach to meeting the physical, emotional and spiritual needs of a dying person. It encompasses all of those things that can help relieve the physical, social and emotional pain of those experiencing a terminal illness. Most hospitals have a palliative care department that care for both children and adults. These departments use a multi-disciplinary team approach relying on input from:

  • doctors
  • pharmacists
  • nurses
  • chaplins
  • social workers
  • psycologists
  • other allied health professionals

in formulating a care plan to relieve suffering in all areas of a patients life. It is common for these departments to have dedicated bereavement worker who is a specialist in this area.

Allied Health

Audiologists

Specialists in hearing and balance and related disorders

Physiotherapists (PT)

Health care professional concerned with mobility, quality of life and movement potential, and the ability to function. PTs have training in orthopedics and palliative care.

Dieticians

Experts in food and nutrition who advise on supplementary nutrition.

Pedicure

Pedicures are very important to prevent nail diseases and nail disorders that have the potential to cause serious issues.

Social Workers

One of the key roles of a social worker is to guide you through the maze that is the hospital system and acquaint you with your social security and community entitlements.

Musical Therapists

Music therapy is a researched-based profession in which music is used to therapeutically support individuals who have serious and palliative conditions.

Community Nurses

Community nurses belong to organisations that support the ill within their communities with home visits, medication, and treatments programs.

Palliative Care

Palliative care is the holistic approach to meeting the physical, emotional and spiritual needs of a dying person. It encompasses all of those things that can help relieve the physical, social and emotional pain of those experiencing a terminal illness. They are most often not-for-profit organisations that have home-based programs to assist the family.

Schooling

Guidance Officers/School Psychologists

The function of a guidance officer is to enhance the education of our children in our primary, secondary and special schools. They are often the first reference point of a student’s change in behavioural and scholastic levels. Some schools employ school psychologists.

School nurses

School nurses are employed to assist school personnel to safely manage the health needs of students with a disability and/or special health needs.

Special schools/education

Special schools address the individual needs of children who have among other things, developmental, behavioural and physical disabilities