ALDConnect Announcements – 9.16.2015

Early registration for the ALD Connect Annual Meeting ends TODAY!

Where?
Wyndham Boston Beacon Hill Hotel
5 Blossom Street, Boston MA 02114

Meeting Agenda

Patient Hotel Scholarship

Patient Travel Scholarship

*Registration fees will increase starting September 17th, 2015.

REGISTER FOR THE MEETING HERE

To book your discounted hotel room
please call 617-724-7630 and reference
‘ALD Connect’ for the discounted price
or CLICK HERE and book online.

*Discounted hotel room block extended
a second time until Thursday, 9/17

ALD Connect

ALD Connect Webinar – Where are we now? What will 2016 bring?

This ALD Connect webinar will review ALD Connect structure, progress, and future plans. The webinar will cover work achieved and planned by all of the work groups and will be open for attendee questions & feedback at the end.

When: Friday September 25th 4:00pm EST.

CLICK HERE to register for the webinar.

Community Congress

Community Congress: Newborn Screening Working Group Webinar

This ALD Connect webinar will review ALD Connect structure, progress, and future plans. The webinar will cover work achieved and planned by all of the work groups and will be open for attendee questions & feedback at the end.

When: Wednesday, September 23, 2015 2:00 PM – 3:30 PM EDT

CLICK HERE to register for the webinar.

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Support Amanda- a mother with a son affected by Krabbe, by getting your own fun Jamberry nails!

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My name is Amanda and I am a stay at home mother and caretaker. I have two children, and couldn’t love them more. My husband is my best friend and I just take life day by day. I look so forward to assisting you with shopping for Jamberry wraps and whatever else you may need. My son Blaine has a rare and fatal disease called Krabbe Leukodystrophy. I am his caretaker. He has helped me understand the true meaning of life. <3

Nails designed by Amanda for leukodystrophy month!

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Get Jamberry nails!

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