Join the ALD Connect Patient Portal and be part of a global effort to fight ALD/AMN. Your information can help doctors and researchers to shape the direction of research and care. For perhaps the first time in the history of this disease, your experiences, your concerns, and your ideas will take centre stage.
You know first hand about Adrenoleukodystrophy. No one experiences the burden and pain of the disease as you do. No one knows the frustration and despair of searching for a successful treatment as you do. No one knows what it is like to endure the side effects and risks of the few treatments available today. No one else understands the toll this disease can take upon families, relationships and friends as you do.